tag:blogger.com,1999:blog-6339275659915318708.post3080132342870757395..comments2012-01-22T09:08:55.149-08:00Comments on UnZipped: Revolutionary Decompression for Chiarians!Qhttp://www.blogger.com/profile/04870793210972293227noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6339275659915318708.post-32421546641763048832010-05-14T04:04:36.640-07:002010-05-14T04:04:36.640-07:00Hi Trish! I guess I haven't been keeping up on...Hi Trish! I guess I haven't been keeping up on this blog very well. I apologize for the delay. I don't know of any docs in Texas. Sorry :( Dr. Di is amazing and I highly recommend endoscopic decompression if applicable. Any decent doc would treat you if you are having symptoms. Unfortunately, there are not many descent docs. Most are text book sheep! I have another blog called mychiaribooboo.blogspot.com which elaborates on the endoscopic decompression. <br /><br />Good luck to you Trish! If you have any more questions, feel free to write me :)<br /><br />Much love,<br />LoriLorihttps://www.blogger.com/profile/08973369675656215675noreply@blogger.comtag:blogger.com,1999:blog-6339275659915318708.post-73274780317779678212010-05-07T12:33:34.436-07:002010-05-07T12:33:34.436-07:00Lori,
I just found this post and found it very in...Lori,<br /><br />I just found this post and found it very interesting. I was wondering if you had more information!! I was diagnosed with chiari and retroflexed odontoid and all that jazz at the Chiari Institute, but like you mine is only 3mm, and because no other radiologist has ever mentioned it or even considers it a possibility my neurologist will not acknowledge it. I don' tknow what to do. I can't afford to go to NY again, and keep going there until I am well, no way.... I saw that you mentioned Dr. Di and some dr's in Texas?? I am in Texas and it would be much easier to be closer. Can you tell me more about this? Thanks so much! And thanks for sharing your story!<br />TrishTrishhttps://www.blogger.com/profile/00066168943529936014noreply@blogger.comtag:blogger.com,1999:blog-6339275659915318708.post-3287700511973695222010-03-23T15:21:54.953-07:002010-03-23T15:21:54.953-07:00Absolutely, girl!! Post away! I want to get the wo...Absolutely, girl!! Post away! I want to get the word out that being a zipperhead is not a right-of-passage for Chiarians. No one ever has to know we have Chiari unless we tell them. No more lingering side effects from having our heads split open!! How exciting for the Chiarian community! <br /><br />Now, there is this new revolutionary supplement that may change our bodies all together; helping us with the residual damage that Chiari leaves behind and that surgery does not fix! I have had peripheral neuropathy for a few years now in my left foot. So horrible at times that it is hard to sleep. I can always feel my foot -- ALWAYS!! Now, after two weeks on the supplement, I noticed that I couldn't feel that annoying tingling feeling in my foot unless I really concentrated! Crazy! I am adding a link to the supplement on my blog so that others can feel the same benefit I am feeling. This supplement did for me what the neurologist at the Cleveland Clinic could not; it gave me relief from my neuropathy! It is a bold new world for our kind :)Lorihttps://www.blogger.com/profile/08973369675656215675noreply@blogger.comtag:blogger.com,1999:blog-6339275659915318708.post-46965128374638542562010-03-22T14:11:56.599-07:002010-03-22T14:11:56.599-07:00Lori,
Thanks for sharing your experience with us....Lori, <br />Thanks for sharing your experience with us. I just heard about this surgery recently (I keep up with my hospital's stuff and saw an article on it). Shocked to hear we have endoscopic brain surgery now. Crazy, awesome stuff!!!!!<br />I am so glad to hear you are doing well. Mind if I post your blog on my personal website as well? I have an alternative therapies section.<br />QQhttps://www.blogger.com/profile/04870793210972293227noreply@blogger.com